Friday, December 29, 2006
So here are some more pictures of her in the hospital. You can tell that she is not feeling up to par but she is a fighter. She is still doing good, she has just been sleeping a lot which is good. We have lots of hats to cover up the head and she doesn't even mind them on. I was worried that she would try to take them off but she hasn't really tried. So we are still hanging in there. We just take it day by day. Tomorrow is just another day.
Thursday, December 28, 2006
So she finally lost every bit of her hair. It was a given but I dreaded this day. Now that it is here I know that it is the least thing that I need to worry about. It just hair it will grow back. She is still doing so good, the doctors are amazed everyday they walk in and she is still holding strong. Actually today the doctor came in and said that she is his easiest patient which is awesome knowing what she just went through. Stay strong Kynna.
Saturday, December 23, 2006
So I took the kids up to the playroom at the hospital because they were getting a little stir crazy. The rooms are small and having 5 people in the rooms its even smaller. So anyway I came back down after a half an hour to find Craig and Kynna sleeping face to face. Makynna's nurse was in the room when I walked in laughing. She thought it was cute so I had to take a picture of it. They sleep like that for another hour. When Craig woke up he complained that his face hurt I kinda laughed as I showed him the picture.
Thursday, December 21, 2006
So yesterday was our big day. Jacob had to be at the hospital by 6 o'clock and his procedure started at 7:30 a.m. He went into it like a pro. He never complained once. When it was all over and he woke up from it he made the comment to Craig " its already over, I didn't even cry". I am so glad that that's over. They had to take the bone marrow to the labs a split the bone morrow from the red blood cells because Jacob and Makynna are different blood types. Don't ask me how they did that. Then Makynna got the bone marrow by 1:00 an finished by 6:00. She is doing really well. She hasn't even gotten to sick but it can still come because her white blood cells are at zero. We just have to be really careful. Jacob is doing really good to he was running a couple hours after they took his bone marrow. He never complained about being sore. Man Kids are so tough. We don't give them enough credit. I couldn't be more please with the hospital and the staff they are awesome. Know it is a wait and see game. It could take 4-6 weeks until we know if Makynna has taken on to Jacobs bone Marrow.
Thursday, December 14, 2006
So today makes the 5th day of Makynna's Chemo. She has been doing really well. I know that the rath of it will be coming a little later. So my amazing mother came down here to Stanford to help me until Craig could come down. We got a call late Monday night telling us that her mother was in a car accident a was killed. Tragedy again struck the Jones Family. It was such a shock to all of us that it didn't even seem real. So my mother left to take care of everything and I am down here by myself and I have a lot of time on my hands. I have made three blanket, filled out my Christmas cards, finished most of my cookbooks that I am making for some of my friends and family for Christmas and started scrapbooking again. It has been nice except that I haven't been out of this room in a couple days and that gets old. Oh well I have to get used to it I will be here for a couple months. I don't mean to complain I need to stop being so selfish. Merry Christmas to all.
Monday, December 11, 2006
Well we are finally down here at Stanford! It has been a long exhausting road to make it to this point. Makynna just started her Chemo today and she is doing good. They say that it doesn't start affecting the kids until a little later. I have such mixed feelings about everything. I am so excited to be here and to start everything but it is hard to think of what she has to go through. Another thing that had been going through my mind is having more children. There is a 25% chance that I will have other kids affected by Hurlers. That is scary I don't want to put another kid through this plus I don't know if I could make it through again. I just talked to a doctor about it today and he said that it might be smart to be artificially inseminated (I totally misspelled that) I just feel that there is a plan for each and every one of us and that whatever is meant to happen is going to happen. I just feel that it is taking away from heavenly fathers plan but then again modern medicine is here for us. Please help with any suggestion.
Sunday, December 03, 2006
Well we are finally on our way! We just spent our last week at Stanford finishing up all the last of the testing that needed to be be done. Now we finally get to start everything. I know its something that we shouldn't be excited for but they have put us off 3 times and I just want it to be over with. We leave December 9 and they admitted her the morning of December 10. I am excited but scared. They start Chemo on th 11 and do about 7 days of Chemo, then they have 2 rest days and then Jacob comes in December 20 to do the transplant. What a stud.