Friday, October 31, 2008
Oh MY Gosh!!!
How cute is she!!! We just got back from a long Sanford trip and everything is looking good. They have stopped IVIG (which is a immune system booster) so we don't have to go down every 4 weeks. Now its every 8 weeks or so which is huge considering we have been making that trip every 4 weeks not to mention that it sucks!!! Makynna is still making huge strides everyday which is exactly what they want. We did everything from vision, audiology, cardio, hand doctors to making splints for her hands at night to more and more blood work. She has gone through more than any kid should have to go through. We started our appointments at 9 a.m. and finished our last about 4 p.m. what a day not to mention we had a couple the following day. The one thing I do have to say is that I love the care she gets down at Stanford. They treat her like a person instead of a patient. Its amazing. She started speech therapy twice a week in our home and she is doing amazing.