Well I am finally back from a crazy emotional summer. We have been everywhere and back and its finally coming to a head!!! We found out a couple months ago that our daughter Makynna had been diagnosed with a rare birth defect called hurlers syndrome. It was very hard at first, but now with modern technology there is a cure and that is were we are at now!! It is going to be a hard year for us but with all the support that we have hopefully it will be easier then not. We are very scared but know that this is what we have to do to help our daughter get and stay heathy. So Makynna had to have a bonemarrow transplant. They just called us today and told us that our son Jacob (our 5 1/2 year old) was the perfect bonemarrow match and so we will be down in Stanford in about 3- 4 weeks to start the transplant. After we start I will stay in Stanford for about 6 months depending how everything is going. It will be challanging but this is what we have to do for our baby. The better side of all this is when everything is done and Makynna has taken on to the new bonemarrow it will give her what she needs to cure her disorder.
4 comments:
I just got tears in my eyes for you. You are such good parents, and your family is so strong. You amaze me. Jacob will always know what an amazing help he was to his baby sister! Keep us informed and I will always be praying for you!
Love,
Sarah
Our thoughts and prayers are with you guys. I wish I could be there to help you out. How special for Jake to be able to be a donor for Makynna. I wish you the best and don't forget to keep us updated!
I am so happy there is a cure for little Makynna. She is a precious little girl and Jake is a great big brother. I also wish I could be there to help you out during this time! I will be thinking of you. Keep us informed.
You guys have been through a lot this summer and I am so amazed at how strong you have been. Your such a good mother and your kids will miss you like crazy but it is obviously what has to be done. I hope you know I will be here to help you with anything and everything!
Post a Comment