Craig's Family!!!!

Lynn, Monique and Wendy came out from Utah to visit us here is good old Palo Alto (our new home). We had so much fun shopping, playing old maid and just being together. While they were here Makynna's counts came up and so she got to go outside for the first since she was admitted on December 10. She is still doing amazing minus here counts fell back to 500 but we are hoping that it was just a miscalculation. We will find out in the morning if they came up or if they stay the same. Hope for the best!!!

More and More Pictures!!!!

My Family!!!!

I haven't seen my kids since the day after Christmas and I missed them so much. My mom and Grandma Helen came down to visit Makynna and I and they brought my kids down. Makynna was so excited so see everybody that she about jumped out of my arms.

Friends and Family!!!

So for the record I have the best family and friends ever. Kelly, Pam and Cohen dropped Lindsey off at the San Francisco airport on Tuesday and then drove another 30 miles to come and visited Makynna and I. We went to Cheesecake Factory for dinner after finding out what Kelly and Janelle we having. We actually got it to go so we could come back to the room so they could see Makynna. Makynna loves visitors because she is in isolation to her room and hasn't been able to leave since we got here on December 10. Then next day Kelly and Pam were leaving but they had to make one last stop before they left, which was Ikea. Ikea is the coolest place ever. It has everything you want for your home at affordable prices. So anyway I got to spend the last day with them shopping at Ikea which takes about 3 hours rushing through the store. It was so much fun. Thanks Kelly and Pam!!!

Makynna having fun!!!

Having fun pulling out all the wipes!!!

Blessed!!!

We are so blessed to have amazing family a friends. Makynna and I have been at Stanford for a month now and it has gone by so fast thanks to all my amazing family and friends who have support me though this huge trial in my life. I have only had a few days by myself because different people come down at different times so I always have somebody which is way nicer then being down her by myself. I actually met a women who had a son going through a transplant because of leukemia and she said that her family told her that this is her life now and that she has to deal with it on her own. I couldn't imagine going through something like this without the love and support of family and friends. Thanks to everybody who has gone out of their way to make this time in my life as easy as possible. As for the hat that Makynna is wearing some lady made it and brought it to my dad at work. I don't even know the lady but it was very thoughtful of her.

A New Hat!!!

My cousin Carrie came to visit us on Monday and she brought the cutest hat ever. It was so much fun she took me to lunch at the Cheesecake Factory while my sister Jenna (who has helped me out a ton) stayed with Makynna so I could take a break and get out. After lunch we came back to the hospital and hung out for a few hours until she had to go. Thanks Carrie!!!

It's a Boy!!!

Mikey and Janelle just found out yesterday that they are expecting a baby boy!!! His name is going to be Connor Mack Jones. We are all so excited and can't wait to start buying boy stuff. This is the ultrasound pictures in 3-D. She was only 18 weeks.

Eating Ice Cream!!!

So today has been a good day. We started the day sleeping in until 10:00. After being woke up a couple times through the night. The hardest thing about being in the hospital is not having any alone time. It seems like even at night the nurses are waking us up for vital which I know is mandatory but gets old. Makynna is doing really well with it that now she doesn't usually wake up for vital times I guess its pretty sad that she is getting used to it. So this is a picture of Makynna eating Cold Stone ice cream (compliments of her father) she is loving every bit of it.

Happy Days!!!!

My Mom, Chrissy, Brooklynne and Jenna all came down on Wednesday to visit us at the hospital. Makynna was so excited to see new faces that she pratically jump out of my arms to see them. The funniest part about everything is wherever Brooklynne was Makynna wanted to be, whatever Brooklynne had Makynna wanted, Whoever was holding Brooklynne Makynna wanted to be held by the same person. Makynna just couldn't get enough of her cousin Brooklnne. As you can see in all these pictures her days get better and better. The doctors are amazed on how good she is doing. My personal belief is that keeping Makynna happy and enjoying the friendly faces is helping her heal faster.

Still Going Strong!!!

So as you can see Makynna is still doing so good. The doctors can not believe how good she is doing. Its still early to say but her white blood cell count is starting to make its way up which is what we want. She has to get her count up to the 500 before she can come out of isolation. As you can see Makynna is very swollen because they are pumping her full of fluids. Due to all the medications they are giving her its making her retain water. When we were first admitted into the Hospital she weighed 20 lbs 9 oz and today when they weighed her she weighed 24 lbs. She is so heavy to. They say that as soon as she come off of all the meds she will drop all the excess water weight and not be swollen anymore. So each day gets better and better lets just hope to keep up the pattern.

Bald is Beautiful!!!

So here are some more pictures of her in the hospital. You can tell that she is not feeling up to par but she is a fighter. She is still doing good, she has just been sleeping a lot which is good. We have lots of hats to cover up the head and she doesn't even mind them on. I was worried that she would try to take them off but she hasn't really tried. So we are still hanging in there. We just take it day by day. Tomorrow is just another day.

So Sad!!!

So she finally lost every bit of her hair. It was a given but I dreaded this day. Now that it is here I know that it is the least thing that I need to worry about. It just hair it will grow back. She is still doing so good, the doctors are amazed everyday they walk in and she is still holding strong. Actually today the doctor came in and said that she is his easiest patient which is awesome knowing what she just went through. Stay strong Kynna.

Sleepy Time!!!

So I took the kids up to the playroom at the hospital because they were getting a little stir crazy. The rooms are small and having 5 people in the rooms its even smaller. So anyway I came back down after a half an hour to find Craig and Kynna sleeping face to face. Makynna's nurse was in the room when I walked in laughing. She thought it was cute so I had to take a picture of it. They sleep like that for another hour. When Craig woke up he complained that his face hurt I kinda laughed as I showed him the picture.

Our Big Day!!!

So yesterday was our big day. Jacob had to be at the hospital by 6 o'clock and his procedure started at 7:30 a.m. He went into it like a pro. He never complained once. When it was all over and he woke up from it he made the comment to Craig " its already over, I didn't even cry". I am so glad that that's over. They had to take the bone marrow to the labs a split the bone morrow from the red blood cells because Jacob and Makynna are different blood types. Don't ask me how they did that. Then Makynna got the bone marrow by 1:00 an finished by 6:00. She is doing really well. She hasn't even gotten to sick but it can still come because her white blood cells are at zero. We just have to be really careful. Jacob is doing really good to he was running a couple hours after they took his bone marrow. He never complained about being sore. Man Kids are so tough. We don't give them enough credit. I couldn't be more please with the hospital and the staff they are awesome. Know it is a wait and see game. It could take 4-6 weeks until we know if Makynna has taken on to Jacobs bone Marrow.

Tragedy Struck Again!!!

So today makes the 5th day of Makynna's Chemo. She has been doing really well. I know that the rath of it will be coming a little later. So my amazing mother came down here to Stanford to help me until Craig could come down. We got a call late Monday night telling us that her mother was in a car accident a was killed. Tragedy again struck the Jones Family. It was such a shock to all of us that it didn't even seem real. So my mother left to take care of everything and I am down here by myself and I have a lot of time on my hands. I have made three blanket, filled out my Christmas cards, finished most of my cookbooks that I am making for some of my friends and family for Christmas and started scrapbooking again. It has been nice except that I haven't been out of this room in a couple days and that gets old. Oh well I have to get used to it I will be here for a couple months. I don't mean to complain I need to stop being so selfish. Merry Christmas to all.

On Our Way!!!

Well we are finally down here at Stanford! It has been a long exhausting road to make it to this point. Makynna just started her Chemo today and she is doing good. They say that it doesn't start affecting the kids until a little later. I have such mixed feelings about everything. I am so excited to be here and to start everything but it is hard to think of what she has to go through. Another thing that had been going through my mind is having more children. There is a 25% chance that I will have other kids affected by Hurlers. That is scary I don't want to put another kid through this plus I don't know if I could make it through again. I just talked to a doctor about it today and he said that it might be smart to be artificially inseminated (I totally misspelled that) I just feel that there is a plan for each and every one of us and that whatever is meant to happen is going to happen. I just feel that it is taking away from heavenly fathers plan but then again modern medicine is here for us. Please help with any suggestion.

Finally!!!!

Well we are finally on our way! We just spent our last week at Stanford finishing up all the last of the testing that needed to be be done. Now we finally get to start everything. I know its something that we shouldn't be excited for but they have put us off 3 times and I just want it to be over with. We leave December 9 and they admitted her the morning of December 10. I am excited but scared. They start Chemo on th 11 and do about 7 days of Chemo, then they have 2 rest days and then Jacob comes in December 20 to do the transplant. What a stud.